To improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening.

The HEROIC Registry


The HEROIC Registry is the first of it's kind patient-centric genetic database that will enable patients to take an active role in furthering research into Lynch Syndrome genetic mutations. 

Learn how to participate

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Upcoming Events

Saturday, March 24, 2018 - 8:00am
LYNKED IN Lynch Syndrome conference at Dana Farber Cancer Institute

LYNKED IN is an annual, one-day, educational conference for individuals with Lynch syndrome, their families, and caregivers, hosted by Dana-Farber's Center for Cancer Genetics and Prevention, and with the goal of connecting and empowering Lynch Syndrome families.