AliveAndKickn’s new HEROIC Mosaic Research Community, an online crowdsourcing approach to design research studies, has been chosen as a Commitment to progress by the Biden Cancer Initiative.
My journey into finding that I have Lynch Syndrome (PMS2) was about the hardest you could fathom, I lost my oldest daughter, Kirah at 19 to Constitutional MisMatch Repair Deficiency (CMMRD).
I was diagnosed with Lynch Syndrome in the summer of 2016. My story begins in my early childhood when my mother was diagnosed with lung cancer at the age of 35. Unfortunately, she died only two months after diagnoses leaving behind two young daughters.
I was diagnosed with Lynch Syndrome in January 2017 after my dad, who has been battling colon, ureter, and liver cancer had his genetic testing done and tested positive for the mutation (MSH2).
Hello!! I just recently found out I have Lynch through genetic testing. Cancer runs in my family with numerous people having the various Lynch cancers. Interestingly, I had what for now is still considered a non-Lynch cancer - Hodgkins Lymphoma - at the age of 26.
Oct 2012 I was diagnosed with stage 3 bowel Cancer and stage 1 Ovarian Cancer when I was 41 years old.
Nov 2012 had Both Cancers removed.
Where to begin? It was only recently, September 18th 2016 that I found out I had Lynch Syndrome. Genetic testing confirmed this. I am adopted so I had no hereditary history to work with. This journey to this discovery actually starts in 1996, March to be precise.
I was diagnosed at 38 with Stage IIIb Rectal Cancer, a sure shock to a healthy and active husband and father. I was also diagnosed early in life with an undying devotion to the game of soccer. How appropriate that a friend from high school introduced me to Dave and Robin Dubin.
At the young age of 32, with five year old twins at home, I was diagnosed with Uterine Cancer November 7, 2012. After further treatment & receiving the news that I was cancer free, I soon realized that my cancer was hereditary. I was diagnosed with Lynch Syndrome February 2013 through genetic testing of my tumor (PMS2) It was passed down to me from my maternal great grandm
When I was 12 years old my mother died of colon cancer, she was 34. Her mother had died of colon cancer three years before at the age of 54. I always knew that cancer "ran in our family." You just didn't talk about cancer back then. It was taboo, almost like you could catch it by just talking about it. So years went by and I and my three brothers grew up.
My name is LeAnne Smelser Daringer, and I’m AliveAndKickn in Southern California! I grew up knowing that we had a lot of cancer in my Dad’s family. My great-grandfather and grandfather both died on the same day of colorectal cancers—and my grandfather was only 34 years old. One of my Dad’s older brothers died at age 26 of colon cancer.