To improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening.

The HEROIC Registry


The HEROIC Registry is the first of it's kind patient-centric genetic database that will enable patients to take an active role in furthering research into Lynch Syndrome genetic mutations. 

Learn how to participate

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Recent News

April 10, 2016

Join us on Sunday, April 24, 2016 as the NY Red Bulls take on Orlando City SC at Red Bull Arena.  Proceeds of tickets sales go towards Lynch sundrome awareness by using the promo code, KICKN16. Purchase tickets here. 

Upcoming Events

Friday, June 3, 2016 - 7:00pm
American Society of Clinical Oncology

AliveAndKickn will be represneting the Lynch syndrome community at ASCO